Friday 30 December 2016

Neuro Diverse Team World Trip United - Who's In

I sit here
unable 
to
travel the world
due to lack
of
money.

However
I already
travel
the
world.

How can this be!

Internet,
World Wide Web
Laptops,
iPads,
Cellphones
Electricity,
Power.

The ability to type my thoughts!

People,
Look,
See,
Ask,
Receive.

This is how I travel the world already!

Do I wish
to
physically
see
the
world.

Sure I do!

At the
moment.
I can't.

I have to be happy with what I can do now!

God
works
through
me.

It is not through me, but through Christ!

That
the
World.
Looks,
Sees,
Ask,
Receives. 

Their answers to their questions about what it is like to be Autistic!

To be
Autistic.
Means
sometimes
not
having
the
money
to
travel
the
World.

This is true also for Neuro Typicals!

But even
more so,
for 
disabled
and neuro diverse
people.

Sometimes we just don't get hired!
Or do not have the ability
to work full time.
Or simply
because 
people
are blinded
by the
old thoughts
and theories 
of
that 
non speaking
autistics
are incapable
to ever
work!

Non speaking Autistics - Speak Out!

Are we listening?
Are you listening?
Does having the ability to work
mean we also have to physically talk?
Or can we simply be ourselves?

Can Neuro Typcials
Accept Us 
For who we are are. 
For who God made us to be!

That is yours, mine, and the worlds independent decision to make!

I've made my decision.
That through Christ
I am able
You are able
The world is able

Without acceptance we are not able!
Through acceptance we are able!

I love the Lord Jesus Christ!
For he made me
who I am
who you are
what the world is.

But is it sin, or arrogance or simply not having the ability
to accept us for who we are!

We accept Neuro Typicals
some have hurt us.
Some have been very good to us.
But to me God is the only person
that will ever remain Faithful to me. 
The only person that will completely 100%
Believe in me
Even if I stuff up
Even if I do not have the physical ability to speak!

As here I am able to type to you now!

Is that not my thoughts right now!

If you believe someone else has written this for me?
Or you simply think I'm too able to be moderate to severely autistic?

Think again as you are judging me
while I do not judge you
for judging me.
As this 
is 
God's
place to judge.

I already have justice
because
I believe in myself
and God believe's in me whole heartily.

I have one wish, my wish is for you
to know God
in
the
ways
that I know God to be.

A very loving, caring God.




Thursday 29 December 2016

Wairewa Hot Pools - Scary Slides

Hot pools
Scary slides
Sensory 
Seeker
Avoider 
Can it be done!

Hot pools
Scary slides
Sensory
Seeker
Avoider
It sure can be done!

I am living prove!

Hot pools
Scary slides
Sensory 
Seeker
Avoider
It's bloody awesome

Screammmmmmmmmmmm! 

Hot pools
Scary slides
Sensory
Avoider
Seeker
Neuro typicals 

Screammmmmmmmmmm!

Hot pools
Scary slides
Sensory
Avoider
Seeker
Shared experience! 

Hot pools
Scary slides
Sensory 
Avoider
Seeker
We can be alike!

Hot pools
Scary slides
Sensory 
Avoider
Seeker

Happpppppppppppppppy!

Hot pools
Scary slides
Sensory
Avoider
Seeker

We all have fun!

Hot pools
Scary slides
Sensory
Avoider
Seeker

Water is relaxing for both

AUTISTICS

and

NEURO TYPICALS

Wednesday 20 July 2016

Being an Autistic Woman

Autistic
and
being a woman
can be
extremely hard 
at times.

I have
invisible
woman issues
that I have to deal with
which really
not a lot of woman 
without autism really
talks about.

Which leaves me
guessing
as to trying
to understand
these woman issues
I deal with.

Sensory issues
communication issues
anxiety issues
emotional regulation issues
sexuality awareness and
understanding issues.

On top of this
I deal with
monthly bleeding.

This is the thing
that really 
not many woman 
without autism 
talk about
let alone autistic woman.

The sensory issues
with monthly bleeding
can be so severe at times
that it leaves me
to head bang and
self bite 
during this time.

I can not stand
the sight of blood
I can not tolerate
sanitary pads
let alone
have the gross motor skills
to use tampons.

Some autistic woman
opt to 
suppress 
their monthly bleeding.

I was one woman
that chose to 
suppress
my monthly bleeding.

Sadly I reacted
it did not go well for me.
So the Mirena 
was removed.

Now I am left
with the monthly bleeding
which 
I
sensory and anxiety
wise can not handle.

Sometimes I wonder 
why 
I have monthly bleeding.

I wish that my moderate to severe Autism
meant that monthly bleeding wouldn't 
come either.

As I 
really
can't handle
it at all!

How do I go about it,
when I have to rely
on my carers 
to help me
manage my 
monthly bleeding.

This affects
my self esteem.

I get heavy bleeding
this I do not like. 
This leaves
me to be highly anxious.
The sensory stuff of 
monthly bleeding
I will never like. 

This is the stuff
that neuro-typicals
do not understand how 
sensory issues for 
a autistic woman
affect us
being able to effectively
manage our 
monthly bleeding on our own.

Sunday 26 June 2016

Jesus as a Minority - How it Relates to me as a Disabled Person

Jeremiah 29:11
For I know the plans
I have for you
Plans to give you
a hope 
and a future. 

This resonates with me 
at the moment 
Because 
I'm going through 
Many stressful events
at the moment.

It reminds that
I need to put 
my full trust
in God.

But I also 
wonder how the verse
relates to us
as disabled people
and being a 
minority group.

I see it
like this.
Jesus was a minority
there was only one of him

So in a way
this reminds me 
of the disabled sector
and how we feel
Not included 
by society
at times.

I think Jesus
also felt
excluded
but he 
remained with 
a open heart
for whenever
people are ready.

In a way
that is like us
we are waiting and ready 
to let people in
when they choose
they want to associate with us.

Sunday 19 June 2016

Invisible becomes Visible Disability

So when does invisible becomes a visible disability. 
My neuro-diverse needs
are invisible 
to the naked eye
unless you know
what you are looking for.

But what if you were
to suddenly throw in
a visible
physical disability
into the mix.

Yes! Thats Right!
I have a physical disability.
I had not really
thought of this before,
until I became aware
that in fact it was
a visible disability,
but it remained
a hidden
visible physical disability.

Until it became clearly
a visible physical disability.
I have 2 drop foots,
no one knows why.
But the fact remains that 
I do!

All my life I did not
know there was a reason
why I tripped up over
my own feet.

As much as it
can be so
clearly
insanely funny
that I appear
to fall
down
and
up
stairs!

I did not know
it was the drop feet
making it
that I was
so insanely incredibly 
a funny accident
for others 
to laugh upon 
and point
at me
all through out
my high school years.

Throw in
2 orthotic ankle braces.
As much as it helps me
to walk better
with ease!

It directly points out
that I'm disabled.
The sudden stares
I now get directly looking
at my feet.

By others that appear
to be uncomfortable
with the fact
that yes
I'm disabled.

But why suddenly 
look at my feet
when all 
you've done
is point out 
my Autistic behaviours.

My hand flapping
My rocking
My pacing
My thumb sucking!

Do I suddenly
look disabled
because
I have
foot braces!

I actually
find your behaviours
insanely funny.

I gladly accept
you now point out
my visible physical disability.

It redirects you
from my 
neuro-diverse behaviours.

Maybe
you will now accept
my neuro-dirvse 
behaviours.

However
why does it take
foot braces
to accept 
that 
I am disabled.

Couldn't you accept 
prior to this
that Ive been
disabled since the day
I was born.

Or should I say
because society
see me as abnormal
and defective
that you had 
to bully
my neuro-diverse needs
my whole life.

I look forward to the day
that you experience
what it is like
to be different
and to succeed in life
just like
all the so called
"normal" individuals. 

Welcome, I can assure 
you that you
are already different
because there 
simply
is
no such thing,
as 
NORMAL.




Friday 10 June 2016

Autism See the Potential Within

Ok so my level of autism is moderate to severe. 
They say at my level of severity we shouldn't be able to achieve
and if we do achieve then how can we be moderate to severe autism.
I look normal
I am a neuro diverse individual
I have multiple neuro diverse needs
ADHDer
Sensory Processing Disorder
Auditory Processing Disorder
Trauma 
Catatonia related to Autism.

But is Autism what we think it is 
is everyone with Autism incapable of achieving anything
Does society perceptions of autistic individuals
limits our ability to achieve 
and make us more disabled over time.

I believe so 
Society sees the labels
and gives up hope 
on us 
ever achieving anything in life.

We start of with a neuro diverse need
a different way of thinking and being.
but no one sees the 
potential within us 
unless your that
someone 
SPECIAL
that does see potential

Instead we end up with being 
severely disabled
by society miss perceptions
of our abilities.

Autism instead is a 
mind-body disconnect 
I am able
I will
I am determined
to achieve.

Don't be put of by 
my inability to control my movements 
making it appear
I am unable 
to 
understand or express myself.

Well in the conventional 
ways anyways.

I communicate in a different way.
My best mode of communication 
is with typing.
I can understand what 
you say to me 
most of the time
accept when I'm in a severe 
sensory overload 
or the choice of words 
are beyond my abilities to
process that degree of 
speech 
due to my 
auditory processing issues.

I am able
and
capable.

I am Autistic and I am proud of it


Wednesday 27 April 2016

Reflections of the First Voices Training today after the 1st day!

Today I went to my first day of the First Voices training which was put on by the Mental Health Foundation and a intiation by Like Minds Like Mine
This is my personal story from the speeches we done today
I done mine on my speech generating device.
I thought I done a totally fantastic job of getting my voice across so here goes.

Speech A - Personal

As a person with lived experience of mental distress, I missed the chance to interact and to be included.
I lacked the social and communication skills to be heard.
I could have used different ways to communicate my thoughts.
A key memory for me was my first experience of being in a psychiatric ward.
I wanted and needed friends.
I needed more autistic specific supports.
I have found support from facebook, the autism and disability sector.
I like the way I never gave up.
I take interest in Autism research.
I believe I am getting better at communicating my needs.
I look after myself by keeping a balance in life.
I have found strength in God. 
I feel more in control.
I dream of a fully inclusive and accessible society. 


And after this speech the facilitator said you would of done better if you used your own voice, I wanna see you use your own voice tomorrow! And I'm thinking is this not my own thoughts, are my experiences any less because right then and there my AAC was my voice as I couldn't speak myself right then and there in that moment, although the other participants really liked what I had to say. 

Stay tuned for Speech B tomorrow after 2nd day of training! 

Wednesday 24 February 2016

History of Autism and Aspergers all revealed in one book : Neurotribes

I've just finished reading Neurotribes today, on my bus trip back to uni where i live currently.

And WOW amazingly AUSOME what I read in the book.

Did Kanner only really see NON VERBAL AUTISTICS?

Did Asperger only see HIGHLY INTELLIGENTLY GIFTED ASPERGERS?

How were we really treated back in the history of HITTLER?

The amazingly AUSOME truth is that both Kanner and Asperger saw a variety of spectrum back then. However they chose different ways to embrace it.

On the Kanner side he didnt want to see the gifts that individuals with autism showed, and classed them all as mentally defective and agreed with murdering autistic individuals. Only 3 of the 7 children he saw were completely non verbal, the rest were verbal to a degree.

Asperger recognised it as a spectrum, but he only chose to report on the highly intelligent gift aspirer individuals but the truth is he also those with non verbal, limited communication autistics as well. But only chose to report the gifted group like he did to try and stop us from being murdered by the NAZI's but we were bloody murdered anyways.

It is totally well worth the read.

I am wonderfully Autiscally made.

Saturday 20 February 2016

Are We Really a Fully Inclusive Society

With all the media attention around the immigration act in New Zealand and disabled individuals being discriminated against in the act.

It appears that only certain cases are brought to the media attention, usually those that are well known.

Are we really a inclusive society when our government purposely discriminates against disabled immigrants?

Then we have Australian born children to New Zealand parents, where there parents pay the NDIS levy fee, but yet their very own children born in Australia are unable to access any of it, or other support until they turn 10 years old. Yet Australians immigrating to New Zealand get the full funded public services including disability support as soon as they immigrate to New Zealand as long as they provide prove they will live here for 2 years or more.

Are our immigration laws in both countries fair and do not discriminate on the grounds of disability?

They say disabled people will cost the government money, but do they not see the value and contributions of disabled people?

Are disabled people really citizens of their countries?

The truth is even in todays age, disabled people are treated as second class citizens.

Every time we deny a disabled individual from being a citizen in any country, we are sending a clear message that we are still not ready for a fully inclusive society, where the disability is always seen, and not the ability that individual has to contribute to society.

Its time to rattle and shake governments all over the world.

we are human beings as well, we deserve to immigrate to countries just like non-disabled people.

New Zealand and Australia are both signatures to the United Nations Conventions on the Rights of Persons with Disabilities - we must keep them accountable to their actions.

I have been called all sorts of names since speaking up for children with disabilities born to NZ parents in Australia.

According to someone who surely doesn't understand the UNCRPD.
I'm a:

A: diminished mind
B: im unequal because i have a disability.
C: I contribute less so I'm unequal.